Data Privacy

By taking part in the ABDR your health information will be used to identify quality of care issues relating to breast device surgery. The ABDR complies with State, Territory and Commonwealth privacy laws, with your data stored in a highly secure database, housed within the Monash University and accessed by trained, relevant ABDR personnel only.

We retain your contact details so that you can be contacted if required, such as for completion of an optional follow-up survey, and to provide information about your device at your request.  The ABDR doe not release any personal information other than to your surgeon/clinician or your healthcare facility. Your details may be linked with state/national health and death registries to ensure the information we hold is accurate and complete, or for research purposes.

Analyses and public reports arising from the ABDR will contain no identifiable information about you.

Any access to information in the ABDR must adhere to strict protocols and procedures to ensure patient privacy and have ethics approval. Registry data will be made available to external researchers (upon ethics approval) but only after all identifiable patient information has been removed.